Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...
Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...
ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...
Thousands of people in Kansas City, Mo., showed up to cheer up a child with a rare and incurable disease 3-year-old Tucker Langford suffers from a painful condition known as “butterfly skin,” which ...
In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Brandon Joseph was born with ...
66% of those with lupus will develop some form of skin disease. In this episode of The Expert Series, Victoria Werth, MD will teach you about how lupus can affect the skin as she describes skin lupus ...
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