Duchenne muscular dystrophy is a progressive muscle wasting disease. It causes muscles to weaken over time because the body cannot produce dystrophin, a protein muscles need to stay strong. Duchenne affects every muscle in the body, including the heart and lungs. Despite the challenges, we choose faith, resilience, and joy. He has already surpassed what doctors once said was possible. Sharing our journey to spread Duchenne awareness and hope. If you’d like to support Duchenne awareness, drop a g
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Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy
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2.2K views · 27 reactions | Duchenne muscular dystrophy (DMD) is a...
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💡 What does “severe phenotype” mean in Duchenne muscular dystrophy (DMD)? When doctors talk about a phenotype, they’re referring to the way a condition shows up in someone’s body, the physical traits and symptoms that result from their genetics. In Duchenne, a severe phenotype usually means the condition progresses more quickly, often with earlier loss of abilities like walking, climbing stairs, or raising arms. This can also bring earlier complications with breathing, heart health, and other a
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💡 What does “severe phenotype” mean in Duchenne muscular dystr…
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When it comes to Duchenne Muscular Dystrophy, what a parent sees is more than just the diagnosis, it’s the quiet courage behind every struggle. She sees her child endure long stretches when he’d rather be playing. She watches lose a little physical strength every day and try to find solutions to find other ways to continue with his favourite activities, if possible, or invest time into other or new interests. Parents help their child get ready for therapies when he’d rather just stay home and be
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25 reactions · 3 comments | Just a few months after Harrison’s...
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1.1K views · 14 reactions | 2024 Walk 4 Duchenne ✨ Our walkers embarked on a five day journey, walking 117kms, visiting five schools who have kids with Duchenne muscular dystrophy. We thank you for walking and raising much needed awareness and funds for Duchenne and Becker muscular dystrophy. | Chemist Warehouse | Facebook
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1.1K views · 14 reactions | 2024 Walk 4 Duchenne ✨ Our walkers e…
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We thought we had more for him to walk. Just four years of independe…
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